The experience of endometriosis amongst South Asian women in the UK

If you are a woman of South Asian origin in the UK with endometriosis, this is an opportunity for you to voice your experience of living with endometriosis.

What is the aim of this research?

The objective is to allow you to voice your daily experiences of living with endometriosis and how it affects your life in a negative or positive way.

This is your opportunity to make your voice and beliefs, your concerns and challenges, and your needs heard.

The findings of this research may have implications for health care services, possibly having implications on management of care, the doctor–patient relationship, and health professionals’ recognition and understanding of the impact of endometriosis and its consequences.

Who can participate in the research?

To participate, you need to meet the following criteria:

  1. You must have received a diagnosis of endometriosis based on laparoscopic surgery
  2. At least 1 year must have passed since you found out that you have endometriosis
  3. You must be of South Asian origin from one of these 5 regions: India, Pakistan, Bangladesh, Sri Lanka, Nepal
  4. You must be born in the UK or living in the UK for at least the past 15 years
  5. You must be 18 years old or above
  6. You need to be fluent in written English
  7. You must possess a smartphone with an inbuilt camera to take photographs.

If you are not sure if you are eligible to participate, please email us to clarify.

What does the research consist of?

For the study, you will be asked to take photographs of your experience of living with endometriosis and explain in writing what the photograph means to you. You will not be required to take pictures of yourself or others. The choice of what to photograph will be yours. You will be required to follow ethical photography practices which will be explained in detail. You will have two weeks to take pictures and will communicate with the researcher via email.

Your participation will remain confidential and anonymous and is completely voluntary. You may withdraw from the research before, during and after participation.

Recruitment of participants is open until 30 September 2018.

Contact

For more information on the research and to learn how your privacy and identity will be protected, please follow this link: https://derby.qualtrics.com/jfe/form/SV_ety0hAzAh36sXhX

Alternatively, for any questions/concerns, please contact Shabnam Jheengoor, psychology student at the University of Derby (UK) at s.jheengoor1@unimail.derby.ac.uk.

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