World Endometriosis Organisations (WEO)
The World Endometriosis Organisations (WEO) was established in 2017 to address the significant global issues facing those with endometriosis and improve health outcomes for girls and women around the world.
→ Official launch (press release)
Background
Representatives from several endometriosis organisations met at the World Congress on Endometriosis (WCE) in Vancouver in May 2017. At that meeting, it was decided to establish a world network of organisations to collaborate, advocate, and engage in activities relative to mutually agreed campaigns, education, and research.
WEO is a professional organisation with the potential to encourage greater emphasis on collaboration, improve relationships with all stakeholders, share expertise to advance skills and knowledge, contribute to the research, and identify new and innovative opportunities to enhance more connectivity and positive contributions to the cause.
Deborah Bush initiated the idea and heads the organisation. The Steering Committee is to be announced. WEO is affiliated to the World Endometriosis Society (WES).
WEO purpose
to improve health outcomes for those with endometriosis
- address the significant issues facing those with endometriosis around the world
- to encourage greater emphasis on collaboration
- improve relationships with all stakeholders
- share expertise to advance skills and knowledge
- contribute to the research
- identify new and innovative opportunities to enhance more connectivity
- contribute positively to the cause
WEO mission
WEO’s mission is aligned with that of the World Endometriosis Society:
to advance evidence-based standards and innovations for education, advocacy, clinical care, and research in endometriosis and related disorders, in collaboration with stakeholders and global partners to improve the lives of all affected women and their families.
WEO membership
Each member organisation must be a registered charity or NGO (not for profit) in their respective country. WEO member organisations must agree to and sign the WEO memorandum of understanding (MOU). Membership is currently free. WEO encourages member organisations to be members of WES. The WEO is apolitical and members agree not to interfere with the branding, policies, procedures and purpose of each group.
September 2020: 30 endometriosis organisations have been accepted as WEO members.
WEO membership organisations
- Asociația Eu și Endometrioza | Romania
- Barbados Association of Endometriosis & PCOS | Barbados
- “Együtt könnyebb” Női Egészségért Alapítvány | Hungary
- EndoActive Australia & NZ | Australia
- EndoCare | Democratic Republic of Congo
- EndoFrance | France
- EndoTalks | Czech Republic
- Endo Türkiye | Turkey
- Endometrioosiyhdistys ry | Finland
- Endometrioseforeningen | Norway
- Endometriose Fælleskabet | Denmark
- Endometriosföreningen, Sverige | Sweden
- EndoHome – Endometriosis Association Belgium | Belgium
- Endometriosis and Reproductive Health Foundation | Bulgaria
- Endometriosis Association of Iceland | Iceland
- Endometriosis Association of Ireland | Ireland
- Endometriosis Association of Maldives | The Maldives
- Endometriosis Association (Qld) Inc | Australia
- Endometriosis Australia | Australia
- Endometriosis Foundation of America | USA
- Endometriosis Foundation Ghana | Ghana
- Endometriosis Foundation of Kenya | Kenya
- Endometriosis New Zealand | New Zealand
- Endometriosis Israel | Israel
- Endometriosis Research Center | USA
- Endometriosis Society Bangladesh | Bangladesh
- Endometriosis South Coast | United Kingdom
- Endometriose Stichting | Netherlands
- Endometriosis Support Group, Nigeria | Nigeria
- Endometriosis UK | United Kingdom
- Endometriosis Western Australia | Australia
- Endo Sisters East Africa Foundation | Kenya
- EndoSurvivours International Foundation | Nigeria
- Fight ENDO Foundation | Australia
- Pelvic Pain Foundation Australia | Australia
The Endometriosis Network | Canada
Trinidad & Tobago Endometriosis Association | Trinidad & Tobago
- Zimbabwe Endometriosis Support Network | Zimbabwe
WEO steering committee
Deborah Bush (principal) | World Endometriosis Society
Philippa Bridge-Cook | The Endometriosis Network, Canada
Emma Cox | Endometriosis UK
Ambah Grant | Trinidad and Tobago Endometriosis Association
Michelle E Marvel | Endometriosis Research Center, USA
Elsie Wandera-Odhiambo | Endometriosis Foundation of Kenya
Newsletters
- WEO Newsletter Issue 8 (Apr 2023)
- WEO Newsletter Issue 7 (Feb 2023)
- WEO Newsletter Issue 6 (Dec 2022)
- WEO Newsletter Issue 5 (Nov 2022)
- WEO Newsletter Issue 4 (Oct 2022)
- WEO Newsletter Issue 3 (Sep 2022)
- WEO Newsletter Issue 2 (Aug 2022)
- WEO Newsletter Issue 1 (July 2022)
Contact
Please contact us for more information.