World Endometriosis Organisations (WEO)

The World Endometriosis Organisations (WEO) was established in 2017 to address the significant global issues facing those with endometriosis and improve health outcomes for girls and women around the world.

Official launch (press release)


Representatives from several endometriosis organisations met at the World Congress on Endometriosis (WCE) in Vancouver in May 2017. At that meeting, it was decided to establish a world network of organisations to collaborate, advocate, and engage in activities relative to mutually agreed campaigns, education, and research. 

WEO is a professional organisation with the potential to encourage greater emphasis on collaboration, improve relationships with all stakeholders, share expertise to advance skills and knowledge, contribute to the research, and identify new and innovative opportunities to enhance more connectivity and positive contributions to the cause.  

Deborah Bush initiated the idea and heads the organisation. The Steering Committee is to be announced. WEO is affiliated to the World Endometriosis Society (WES).

WEO purpose

  • to improve health outcomes for those with endometriosis
  • address the significant issues facing those with endometriosis around the world
  • to encourage greater emphasis on collaboration
  • improve relationships with all stakeholders
  • share expertise to advance skills and knowledge
  • contribute to the research
  • identify new and innovative opportunities to enhance more connectivity
  • contribute positively to the cause 

WEO mission

WEO’s mission is aligned with that of the World Endometriosis Society:

to advance evidence-based standards and innovations for education, advocacy, clinical care, and research in endometriosis and related disorders, in collaboration with stakeholders and global partners to improve the lives of all affected women and their families.

WES vision 

WEO membership

Each member organisation must be a registered charity or NGO (not for profit) in their respective country. WEO member organisations must agree to and sign the WEO memorandum of understanding (MOU). Membership is currently free.  WEO encourages member organisations to be members of WES. The WEO is apolitical and members agree not to interfere with the branding, policies, procedures and purpose of each group. 

September 2020: 30 endometriosis organisations have been accepted as WEO members.

WEO membership organisations

WEO steering committee

Deborah Bush (principal) | Endometriosis New Zealand
Ásdís Bragadóttir | Endometriosis Association of Iceland
Emma Cox | Endometriosis UK
Michelle E Marvel | Endometriosis Research Center
Abeesha Toussaint | Trinidad & Tobago Endometriosis Association
Elsie Wandera-Odhiambo | Endometriosis Foundation of Kenya

→  WEO Steering Committee

Annual goals

Each year the WEO will have a goal to work towards in their respective countries.


Each country to contact their government / members of parliament to raise awareness of endometriosis as a major public health issue.


Raise awareness of endometriosis in young people.



Please contact us for more information. 

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