Survey of unanswered research questions in endometriosis


The James Lind Alliance Priority Setting Partnership for Endometriosis wants to identify and prioritise uncertainties, or ‘unanswered research questions’, about endometriosis. This will help to ensure that those who fund health research are aware of what really matters to both women with endometriosis and health care providers.

Survey-pictureWe have conducted a survey between 7 March and 31 May 2016, where women who have/have had endometriosis, carers/partners/children/friends/parents/employers of a woman who has endometriosis, as well as medical doctors, nurses, and professionals allied to medicine with clinical experience of caring for women with endometriosis shared with us their top three unanswered questions in endometriosis.


What happens next?

If you have done the survey, and provided your email address, we will contact you again with a list of specific questions (based on the most commonly submitted questions in the first survey). We hope that for this second stage you can help us by giving feedback to allow us to reach a final list of prioritised research uncertainties in endometriosis.

The “top 10 list” will be published in a scientific journal, and all questions suggested will be published on the James Lind Alliance (JLA) website.

For any further information please contact Professor Andrew Horne.



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