Survey of unanswered research questions in endometriosis

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The James Lind Alliance Priority Setting Partnership for Endometriosis wants to identify and prioritise uncertainties, or ‘unanswered research questions’, about endometriosis. This will help to ensure that those who fund health research are aware of what really matters to both women with endometriosis and health care providers.

Survey-pictureWe conducted a survey between 7 March and 31 May 2016, where women who have/have had endometriosis, carers/partners/children/friends/parents/employers of a woman who has endometriosis, as well as medical doctors, nurses, and professionals allied to medicine with clinical experience of caring for women with endometriosis shared with us their top three unanswered questions in endometriosis.

We would like to thank everyone who participated in the first survey. We had a tremendous response with 1992 people completing the survey, providing us with over 4800 questions.

We are currently analysing the data and will produce a shortlist of these questions.

What happens next?

If you have done the survey, and provided your email address, we will contact you to take part in our second survey and tell us the ten unanswered questions about endometriosis research that are most important to you. We aim to open the next survey on this page in January/February 2017.

The “top 10 list” will be published in a scientific journal, and all questions suggested will be published on the James Lind Alliance (JLA) website.

Once again, we would like to take the opportunity to thank you for taking time to complete the first survey and we hope you will contribute again by taking part in the second survey when it opens.

For any further information please contact Professor Andrew Horne.

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