Survey of unanswered research questions in endometriosis

HOMEJLA PSP FOR ENDOMETRIOSIS | JLA PSP STEERING GROUP

The James Lind Alliance Priority Setting Partnership for Endometriosis wants to identify and prioritise uncertainties, or ‘unanswered research questions’, about endometriosis. This will help to ensure that those who fund health research are aware of what really matters to both women with endometriosis and health care providers.

Survey-pictureWe conducted a survey between 7 March and 31 May 2016, where women who have/have had endometriosis, carers/partners/children/friends/parents/employers of a woman who has endometriosis, as well as medical doctors, nurses, and professionals allied to medicine with clinical experience of caring for women with endometriosis shared with us their top three unanswered questions in endometriosis.

We would like to thank everyone who participated in the first survey. We had a tremendous response with 1992 people completing the survey, providing us with over 4800 questions.

We have analysed this data and produced a short list of questions for our second survey.

Our second survey

Our second survey, conducted between 20 February and 20 March 2017, has now closed. A huge thank you to everyone who took the time to take part.

We are currently analysing the >2000 responses from this second survey to identify a “top 30” list of research questions.  

What happens next?

We will take the 30 most popular questions forward to a workshop on 25 April 2017, where a group of women with endometriosis and health care practitioners will work with the JLA to produce a final “top 10”.

The “top 10 list” will be published in a scientific journal, presented at the 13th World Congress on Endometriosis, released to the press, and all questions suggested (not just the “top 10”) will be published on the JLA website.

 

For any further information please contact Professor Andrew Horne.

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