Awareness 2011

11 March 2011

Endometriosis Awareness Week in Europe, Africa, Australasia and South America is 7 – 13 March 2011, and in the United States it is for the entire month of March.

Awareness can be raised within local communities, regionally, and nationally, and also provides us with an opportunity  to raise funds for research into better treatments!

What are YOU going to do?

Please get involved with your national support organisation! – Whatever you can do really will make a difference for the estimated 176 million women worldwide who suffer from endometriosis.

EMAIL US with your activities and these will be included on this page for everyone to join in – and as an inspirations for groups further away! This page will be updated weekly from February 2011 and until the end of March 2011.

Together we can truly make a difference!

Follow daily updates on TWITTER

Global

The World Endometriosis Society has launched the first ever awareness film about endometriosis, its symptoms, diagnosis, treatment options – and where to find support:

As a FIRST ACTION for you to raise awareness of endometriosis: please share this film!

You can do so within your websites, blogs, Twitter and Facebook profiles.  However you do it, please share this film to raise awareness of endometriosis! Thank you.

A schedule of national events is available here:

Australia

QENDO will hold events during the month of March to provide information to anyone wishing to find out more about endometriosis.

Rockhampton – Saturday, 12 March
Time: 9.00am – 11.00am
Venue: CQ University
Building 18 – Lecture Room 40
Bruce Highway, Rockhampton
Entry: $5.00 | $4.00 QENDO members – a light supper is included
Rockhampton guest speakers TBA

Toowoomba – Wednesday, 16 March
Time: 7.30pm – 9.30pm
Venue: Cunningham Centre
Toowoomba Base Hospital
Access via West Street, Toowoomba
Entry: $5.00 | $4.00 QENDO members – a light supper is included
Toowoomba guest speakers include –

  • Dr. Ahmed Kassab (consultant gynaecologist/obstetrician)
  • Kathryn Eggins (Vice President – QENDO)
  • Marion Gordon (Crescent Therapies – Kinesiology)

Brisbane – Wednesday, 23 March
Time: 7.30pm – 10.00pm
Venue: QIMR
Level B Meeting Rooms
300 Herston Road, Herston
Entry: $5.00 | $4.00 QENDO members – a light supper is included
Parking is available opposite the venue in the Wilson carpark or along Herston Road and Gilchrist Avenue
Closest Public Transport: Royal Children’s Hospital Herston Busway Station
Brisbane guest speakers include –

  • Dr. Michael Wynn-Williams MBChB, FRANZCOG (gynaecologist)
  • Dr. Jodie Painter & Christina Nagle (QIMR)
  • Debbie Leigh & Mary Melling (Paddington Natural Therapies Clinic – Acupuncture)

Cairns – TBA

Further details regarding guest speakers for each event will be posted on our website over the coming weeks.

Tickets for our major 2011 quilt fundraiser will be available for purchase at each event along with raffles to be drawn on the night. All money raised helps QENDO to continue providing free support for women suffering from endometriosis and raising endometriosis awareness. We appreciate your support.

Please address any queries to our message bank or contact us.

Canada

Calling women in Western Canada! — Shirley Ross from Vancouver, BC, wishes to start a support group. Please contact Shirley if you are interested in getting involved!

France

EndoFrance has arranged the following meetings across France during Endometriosis Awareness Week.

Alsace-Lorraine
Aurélie and Nathalie organize a smeeting in Metz on the 9 March 2011. To attend this meeting you may contact them by email at alsacelorraine@endofrance.org.

Aquitaine
Florence and Patricia organize a meeting on the 5 March 2011 at Bordeaux.
To attend this meeting you may contact them by email at aquitaine@endofrance.org.

Centre
Marina organizes a meeting on the 11 March 2011. To attend this meeting you may contact her by email at centre@endofrance.org.

Ile de France
Prisca organizes a meeting on the 8 March 2011 at Paris. To attend this meeting you may contact her by email at iledefrance@endofrance.org.

Normandie
Yasmine organizes a meeting on the 20 March 2011. To attend this meeting you may contact her by email at normandie@endofrance.org.

Pays-de-la-Loire
Anne organizes a meeting on the 15 March 2011 at Nantes. To attend this meeting you may contact her by email at paysdelaloire@endofrance.org.

Rhône-Alpes
Magali organizes a meeting on the 27 March 2011. To attend this meeting you may contact her by email at rhonealpes@endofrance.org.

Furthermore Dr Ploteau will answer your questions on France Bleu Loire Ocean Radio on the 28 February 2011. Times to be determined. For further information please contact Anne.

Germany

Die Endometriose-Vereinigung Deutschland e.V. veranstaltet am 5. März 2011 ihre Jahrestagung zum Thema “15 Jahre Endometriose-Vereinigung Deutschland e.V.” Neben Vorträgen zum Thema “Möglichkeiten und Grenzen der Selbsthilfe” informieren namhafte Experten über aktuelle

Behandlungs- und Therapiemöglichkeiten. Tagungsort ist die Rehabilitationsklinik und Kurhaus der Eisenmoorbad Bad Schmiedeberg-Kur-GmbH, Kurpromenade 1, 06905 Bad Schmiedeberg. Genaue Informationen zum Tagungsablauf und die Anmeldemodalitäten finden Sie unterwww.endometriose-vereinigung.de.

Dr Reinhard Hannen and Dr Christian F Stoll of the Endometriose-Zentrum Berlin offer all established gynaecologists and urologists plus their employees hospitation-days in our their endometriosis centre. TO make an appointment please contact Ms. Thieme at +49 (30) 26 39 83 12.

Endometriose-Zentrum Berlin also offer all women with endoemtriosis the Endometriosis-Yoga course which free of charge. The well-versed Yogateacher Mrs. Adrienne Eigemann will provide this lesson on 10 March 2011 from 18.00 to 19.15. Please reserve your place by sending an email to info@endometriosezentrum-berlin.de

Ireland

Endometriosis Association of Ireland have arranged the following for the week of 7 – 13 March 2011:

Endometriosis Information Day
Saturday 12 March 2011, 1:30-5pm, at the Lucan Spa Hotel near Dublin.
Keynote speaker: Dr Hugh O’Connor, MRCOG, MRCPI Consultant Gynaecologist & Obstetrician.
Invited Speaker: Dr Tracy Dixon, MSc, PhD, Dip NT, MNTOI, will speak about Endometriosis and Nutrition
Invited Speaker: Adrienne Egan, BA, ITEC Dip, ATMAT, will speak about Endometriosis and Mayan Massage Therapy.

Information and Support Line: 086-320 3855
A support and information phone line will operate each evening during Awareness Week, from 5-7pm.

End to Endo Coffee Mornings
Members help to raise awareness and raise funds by hosting coffee mornings, either at work or at home. Contact the EAI for more information!

Italy

Associazione Progetto Endometriosi Onlus aim to improve the dissemination of information through the organization of conferences and info booths during the awareness week.

An opening of Endometriosis Awareness Week wil take place in Nocera Inferiore (Salerno) on 5 March 2011; this conference will be open to the public and especially to young students.

This year many of our volunteers will be present with the information stands in 15 italian cities on 12 March 2011:

1) Vigevano
2) Verbania
3) Bassano del Grappa
4) Padova
5) Brescia
6) Forlì
7) Verona
8) Firenze
9) Torino
10) Reggio Emilia
11) Parma
12) Roma (policlinico Tor Vergata e Ospedale Gemelli)
13) Gorizia
14) Mirandola-Modena
15) Palermo – on 8 March 2011 and a conference on 12 March 2011

On 12 March APE will also hold a conference in Carrara about infertility linked to endometriosis.

New Zealand

ENDOMETRIOSIS New Zealand launches THE BIG HUG APPEAL 2011

Suddenly, one minute can change everything, which is exactly what happened to all of us in Christchurch on 22 February 2011 at 12.51pm. We were struck by a devastating earthquake shattering our beautiful city and changing lives forever.

We are in the throws of restoring the Endometriosis New Zealand office, shoveling sewage laden liquefaction, cleaning up, putting furniture and resources back and clearing debris in an attempt to regain a sense of normality. Yet, while the focus is on rebuilding Christchurch, endometriosis remains.

Our major campaign has had to be cancelled because of the dire situation with the earthquake and Endometriosis New Zealand is now launching THE BIG HUG APPEAL which raises awareness of endometriosis in New Zealand, supports core services nationwide and will contribute to the immediate needs of Christchurch girls and women who have endometriosis and supports their families.

Details of how everyone can be involved in THE BIG HUG APPEAL are at:www.nzendo.co.nz

THERE’S NO HUGS OR BIG HUG WITHOUT THE ENDOMETRIOSIS COMMUNITY WORLDWIDE.

Voucher for a big hug

Puerto Rico

Join Alexandra Malagón on Friday 25 March on the “Yellow Day” wearing your t-shirt or bracelet, and contribute to the “Fundación Puertorriqueña de Pacientes con Endometriosis”.  Help us continue with our research, education, and support to the patients and their family.

On Saturday 26 March 2011 there will be an Educational workshop for patients and their family “Endometriosis 101” presented by Henry Rodríguez-Ginorio MD.

“Endometriosis multidisciplinary treatment”
Juan L. Salgado, M.D., Ob Gyn
Nabal J. Bracero, M.D., Reproductive EndocrinologistFernando Rivera, M.D., Surgeon
Alvin López, M.D., Urologist

“Psychological aspects of endometriosis and infertility”
Debra Reuben, M.D.

A “live streaming video” of the educational workshop will be presented around the world through the official web page of the “Fundación”: www.endometriosispr.net
Time: 9:00 – 3:00 p.m.
Place: Fraternidad Phi Sigma in Hato Rey

Between 4 – 27 March there will be an Art Exhibition (Art4Health) in the House of Laws, San Juan, Puerto Rico.

Spain

Por segunda vez en la Comunidad de Madrid se celebra la Semana Internacional de la lucha contra la Endometriosis 2011, que tendrá lugar la semana del 7 al 13 de marzo.

En ADAEM hemos programado las siguientes actividades:

El lunes día 7 de Marzo de 2011: El programa España Directo de RNE emitirá en directo aproximadamente a las 12:30 una entrevista con la Dra. Alicia Hernández y con una de nuestras socias, desde el Hospital La Paz de Madrid. Esperamos que sea de vuestro interés.

El jueves día 10 de Marzo de 2011: Mónica Ruiz, una de las socias de ADAEM será entrevistada en la sección de Salud del programa Buenos Días, Madrid en Telemadrid (aproximadamente a las 11:00 h.) Deseamos que su testimonio sirva para visibilizar nuestra enfermedad.

El viernes día 11 de Marzo de 2011: El programa La Mañana de rtve1, en su sección “Saber Vivir” se tratará entre otras enfermedades, la endometriosis que contará con la participación de una de nuestras socias.

El domingo día 13 de Marzo de 2011: Mesa Informativa en la C/Fuencarral, 45 (Distrito Centro), desde las 11:00 a las 18:00 horas, todas las personas que se quieran informar sobre la endometriosis y ADAEM, se pueden acercar a nuestra mesa y solicitar los folletos informativos, recibir el regalo del lazo amarillo (emblema de la lucha contra la endometriosis) e informarse sobre las actividades y el trabajo que realizamos en la Asociación.

 

Switzerland

Endometriose Vereinigung Schweiz is launching in Switzerland this month!

If you are interested in getting involved in events in Switzerland and to support this new group thenplease contact them!

United Kingdom

Fourteen women from the UK have taken part in a photo shoot to raise awareness of the challenges faced by women with endometriosis. Organised by Kaye Sedgwick, the pictures are available on her website: www.kayesedgwick.co.uk/roses/from where it is also possible to donate money to Endometriosis UK, which she is supporting through this initiative. The photos are brilliant!

As part of their campaign “Bring it down” (time to diagnosis), Endometriosis UK was involved in a TV programme about endometriosis on the popular “Lorraine” show on ITV.

United States

The Endometriosis Foundation of America (EFA)has arranged a series of workshops for women with endometriosis (and the partners/families/friends) with the opportunity to TALK with specialists about endometriosis: pain, fertility, sex, complementary therapies, surgery, and a special workshop for teenagers with endometriosis. The workshops are on 19 March 2011 (10.00-14.30) at the Academy of Sciences in New York City.

More information at: www.endofound.org/medicalconference

EFA is also organising its 3rd Annual Blossom Ball for Endometriosis on the evening of 18 March 2011 at the New York Public Library, chaired by Susan Sarandon, Padma Lakshmi, Tamer Seckin, Eileen Guggenheim, Cindy Leve, a.o.

See the website of the Endometriosis Research Center for their initiatives this year.

Raise money for endometriosis research


Contact WERF
for information on how you can help raise funds
for research in endometriosis!

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