| Endometriosis
UK raises more than £8,000 in the London Marathon!
APRIL 2008: Endometriosis UK was granted its first place
in the 2008 London Marathon, where runner, Neil Kelly,
raised more than £8000 for the charity!
Endometriosis
New Zealand launches new website for teenagers
MARCH 2008: Endometriosis New Zealand has developed
a "funky and hip" new website specifically
to answer questions from teenagers about endometriosis.
It includes videos providing expert advice and stories
from teens themselves.
Press
Conference by AIE and SIGO launches Awareness Week in
Italy
FEBRUARY 2008: The Associazione Italiana Endometriosis
(AIE) in collaboration with the Italian Society of Gynaecologists
and Obstetricians (SIGO) held a press conference in
Rome on 26 February to officially launch Awareness week.
Endometriosis
UK has been granted its first place in the London Marathon
FEBRUARY 2008: This is an opportunity to push endometriosis
into the public eye and generate much-needed funds to
raise further awareness of this debilitating disease.
Please support runner Neil Kelly!
New Endometriosis
Support Group launches in Singapore
JANUARY 2008: Azeeza Jalaludeen has launched the "SHINE
Endometriosis Association" in Singapore to reach
out to women in her country and beyond.
Associazione
Italiana Endometriosi (AIE) shares its recent achievements
and milestones
DECEMBER 2007: AIE has made tremendous strides in Italy
over the past year. They share their achievements and
milestones with everyone for inspiration and encouragement.
Ellen
T Johnson Foundation established to support women getting
specialist care
NOVEMBER 2007: Endometriosis advocate, Ellen T Johson,
died on 11 November. The ERC has established a fund
in her name to enable women with endometriosis to receive
specialist care.
Deborah
Bush honoured by Paul Newman's Own Foundation
NOVEMBER 2007: Endometriosis New Zeland Chief Executive,
Deborah Bush, has been honoured as a Paul Newman "unsung
hero" with a grant of $10,000 towards the ENZ adolescent
endometriosis programme, Me.
ERC
announces winner of Nancy Petersen RN Nursing Scholarship
AUGUST 2007: The ERC is extremely pleased to announce
that Mary Zipperer of Wisconsin has been selected as
the winner of the ERC Nancy Petersen, RN Nursing Scholarship
for the 2007-2008 academic year.
Associazione
Italiana Endometriosi (AIE) returns to the Italian Senate
MAY 2007: Associazione Italiana Endometriosi (AIE) presents
a proposal to the Italian Senate for a law to safeguard
the rights of women affected by endometriosis.
European
Commission grants funding for endometriosis work in
Europe
MAY 2007: Historic funding from the European Commission
provides encouraging news for millions of women whose
lives are affected by endometriosis.
Associazioen
Italiana Endometriosi (AIE) Onlus celebrates eight years
of results
APRIL 2007: At its annual general meeting held on Saturday
14 April 2007 Associazione Italiana Endometriosi (AIE)
celebrated the enormous progress it has made during
the last eight years.
European
Parliament brings stake holders together to tackle endometriosis
MARCH 2007: Legislators, clinicians, scientists and
women with endometriosis in Europe came together in
the European Parliament on 28 March to call for more
investment into causal research.
Thousands
of women gather in Sao Paulo for Brazil's first awareness
campaign
MARCH 2007: The 1st Brazilian Endometriosis Awareness
Campaign saw 2,500 women come together to meet with
45 Brazilian physicians to learn more about appropriate
treatment for endometriosis.
First
Endometriosis Support Group launches in Belgium
MARCH 2007: Belgian Endometriose Stichting launches
on 10 March at a seminar at Leuven University Hospital,
with support from the Dutch colleagues.
Endometriosis
UK launches hard-hitting awareness campaign
MARCH 2007: Using a sub-theme of “what if”,
the BLOODY HELL campaign asks how life would be if sex
were so painful it became both a physical barrier and
an intolerable strain on a relationship, and how you
would cope if your social life virtually ground to a
halt because of an illness?
Japan
Endometriosis Association announces significantly adverse
effects of GnRH-a use
MARCH 2007: The Japan Endometriosis Association (JEMA)
conducts a national survery every five years to assess
the effect of treatments for endometriosis. 2007 results
have just been published.
European
Parliament Seminar to highlight socio-economic impact
of endometriosis
MARCH 2007: MEP Diana Wallis, ESHRE, the Europan Endometriosis
Alliance, and the World Endometriosis Society will call
for investment into causal research in endometriosis
at a symposia in the European Parliament on on 28 March
2007 >>
EMAIL US for more information on how to get involved
Nurse
scholarhip announced by the ERC
MARCH 2007: The Endometriosis Research Center kicks
off Endometriosis Awareness Month with a national honorary
award: The Nancy Petersen RN Nursing Scholarship.
Endometriosis
Research Center (ERC) celebrates 10 years
MARCH 2007: In celebration of their 10th anniversary
and Endometriosis Awareness Month, the ERC will be engaged
in many events throughout March to continue their work
on raising awareness about endometriosis and providing
education, research facilitation, and patient support
to the global endometriosis community.
African
Infertility Alliance (AIA) has been launched
JANUARY 2007: An initiative of iCSi International Patient
Leader Community, the AIA is the result of the tremendous
efforts by JOYCE Fertility to bring together the countries
of Uganda, Kenya, Zimbabwe and Israel to share issues
concerning infertility in their respective countries.
New
image and name for Endometriosis UK
NOVEMBER 2006: The National Endometriosis Society in
the UK has changed its name to Endometriosis UK to sharpenits
image and to strengthen its branding, clearly identifying
what the charity is about.
New Endometriosis
Support Group formed in Northern California
OCTOBER 2006: Asupport group for women who suffer with
endometriosis has been formed in the Contra Costa County
in Northern California, USA.
British
Medical Association awards prize for endometriosis teenage
booklet
OCTOBER 2006: The BMA have awarded their prestigious
Patient Information Award for 2006 to the Endometriosis
SHE Trust (UK) for their teenage information booklet.
Endometriosis
Association Queensland has new patron
OCTOBER 2006: The Endometriosis Association (Qld) Inc
is proud to announce Dr Susan Treloar as its new Patron.
Endometriosis
Research Centre appoints new director of awareness programme
OCTOBER 2006: The ERC has appointed Erin Blakeborough
as the new Director of their awareness programme. Erin
is a long-time volunteer, who has contributed extensively
to the ERC’s legislative and general awareness
campaigns.
UK National Endometriosis
Society celebrates 25 years
JULY 2006: Ailsa Irving, who founded the NES 25 years
ago, shares her memories of how it was to start a society
in 1981 (before the Internet). This is wonderful reading,
where lots of women are recognised for the early efforts
of getting a national support organisation up and running!
New law
in Spain allocates more money to investigate endometriosis
JUNE 2006: The Spanish Congress of Representatives has
unanimously approved the allocation of more money to
the fight against endometriosis following a proposal
of law instigated by Asociacion de Endometriosis Española.
European
Council conclusions for women's
health in Europe accepted by all Member States
JUNE 2006: The Council of the European Union has formally
recognised the need that more attention is given to
women's health issues - and endometriosis is again highlighted
as a disease which deserves specific attention!
ERC's centralised,
revamped awareness campaign now underway
JUNE 2006: The ERC have centralised and revamped their
various awareness campaigns under one program, in order
to streamline and revitalise their efforts. Join them
to make a difference!
New endometriosis
support organisation started in Malta
JUNE 2006: The first meeting of the Maltese Endometriosis
Society took place on 30 June 2006. Their next meeting
is on 29 September 2006.
2nd
Quarter Newsletter available Associacao Brasileira de
Endometriose [PDF in Portuguese]
MAY 2006: ABEND - Associao Brasileira de Endometriose
publishes a newsletter packed with articles and a great
summary from the recent Brazilian Endometriosis Congress.
Webcast
from the Endometriosis Association's 25th Anniversary
Conference [PDF]
APRIL 2006: The webcast offers video coverage of the
latest research, surgical, clinical, and patient information
from the EA's anniversary conference in October 2005.
Endometriosis
de Puerto Rico has successful first meeting
MARCH 2006: Senator Lucy Arce, president of the Puerto
Rican Senate Health Comission, attended the first ever
gathering of 400 women with endometriosis in Puerto
Rico.
Endometriosis
Awareness Week creates noise, light and hope!
MARCH 2006: National support groups were heard during
Endometriosis Awareness Week, and had support in their
efforts from the European Parliament.
Historic
decision for women's health made by the European Commission
FEBRUARY 2006: The EU's move to include endometriosis
in its Public Health Programme for 2006 could lead to
better diagnosis, treatment and care for women with
the disease.
Austrian
Health Minister urges more awareness for endometriosis
JANUARY 2006: Maria Rauch-Kallat, Federal Minister for
Health and Women in Austria will focus on women’s
health, and endometriosis in particular, during the
Austrian EU presidency in 2006.
Conclusion
of investigation by the Italian Senate into endometriosis
as a social disease
JANUARY 2006: This investigation has been an important
step forward towards the official recognition of endometriosis,
the need for improved therapeutic options, as well as
economic aid to women with endometriosis. This
a huge step forward for women with endometriosis!
More
progress made by the the Italian Endometriosis Association
towards their legislative awareness campaign
OCTOBER 2005:
The Associazione Italiana Endometriosi was received
at the Italian Senate for an audience as part of the
investigation currently underway on the issue of endometriosis
as a social disease.
Announcement
of results from pan-European pain and quality of life
study
SEPTEMBER 2005: The EEA translated this study into Danish,
Dutch, English, Finnish, French, Norwegian and Swedish.
7,025 women with endometriosis completed the questinnaire,
which showed an average diagnostic delay of eight years,
with 65% originally being misdiagnosed with another
condition.
Endometriosis
is highlighted in the European Parliament
SEPTEMBER 2005: Diana Wallis MEP highlighted the plight
of women with endometriosis as part of a report on gender
discrimination in health systems, which was debated
in the European Parliament on 7 September 2005.
Associazione
Italiana Endometriosis and Italian gynaecologists make
history
JUNE 2005: Specialists in all areas of medicine, women
with endometriosis, journalists, and legislators all
came together on 22-25 June to focus on the disease
as a social issue, not only as a medical one. On 28
June 2005, the Italian Senate voted in favour of the
first act of the bill that will recognise endometriosis
as a social disease!
Written
Declaration on Endometriosis
JUNE 2005: A targetted lobbying campaign by the EEA,
along with physicians across Europe, resulted in 266
MEPs supporting the European Parliamentary Written Declaration
on Endometriosis seeking a significant increase in funds
and awareness in the EU for endometriosis. This is the
highest number of signatures achieved for a health issue
and the sixth most successful Written Declaration since
1998. .
Endometriosis
- una visión multidisciplinaria para médicos,
pacientes y familiares
JUNE 2005: This first ever original book on endometriosis
in Spanish is published by La Asociación Endometriosis
Espana and features chapters on all aspects of endometriosis
written by prominent Spanish doctors in collaboration
with women with endometriosis.
Endometriosis Association
(Victoria) celebrates 21 years
APRIL 2005: A reflection on the EAV's ‘life’
to date, with insights into their main achievements
and their impact.
Meetings
with the European Parliament and the European Commission
MARCH/APRIL 2005: Representatives of the European Endometriosis
Allliance met with members of the European Parliament
and the European Commission to discuss the need for
increased awareness of the disease and investment into
research for the cause and prevention of endometriosis.
These meetings led to the launch of the Written Declaration
on Endometriosis.
Endometriosis
Awareness 2005
MARCH 2005: Support groups make headlines during Endometriosis
Awareness Week.
Associação
Portuguesa de Endometriose launched in Portugal
DECEMBER 2004: Ana Cristina Chaves launched the Portuguese
Endometriosis Society in December 2004 with support
from Portuguese gynaecologists.
European Endometriosis
Alliance Founded
OCTOBER 2004: 19 representatives (from 12 endometriosis
support organisations in 11 countries) met to form the
European Endometriosis Alliance.
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2007
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