Pain imagery in endometriosis – common and consistent worldwide?

We are asking for your help because we want to understand more about the pain experience of women with endometriosis.

Why we need your help

universityedinburghOur previous research in the United Kingdom found pain imagery to be prevalent and associated with a reduced quality of life in women with endometriosis.  We now want to find out if pain imagery is common and how it differs in terms of content and impact in women from around the world.

We hope this will ultimately lead to improvements in the management of endometriosis.

Who you are

We would like to hear from you if you are a woman aged 18 years or over with endometriosis diagnosed surgically, with pelvic pain lasting 6 months or more.

What we are asking you to do

We would like you to take part in an anonymous, online survey that allows you to share your pain experience with us.

We start with questions about you, to help us ensure we have a broad representation of women with endometriosis contributing to the survey.

You will remain anonymous throughout.  As you will remain anonymous, the majority of the survey questions are compulsory.  If this causes you any concern please do not start the survey, or close the survey.

Some questions are of a sensitive nature.  Again, if any question causes you concern or distress please close the survey.

In the event that completion of the survey raises any issues of concern for you, you should consider contacting your health professional for further advice and discussion regarding sources of support.  Endometriosis.org lists national endometriosis organisations from around the world that may be able to provide advice or support.

We would like to stress that you do not have to complete the survey, and should only do so if you want to. 

As highlighted above, you are free to withdraw at any time – simply close the survey – and you remain anonymous.

What will happen to your responses

All the responses we get from women who complete this survey will be gathered together.  The survey results will be shared with health professionals in order to raise awareness of pain imagery and its impact on women with endometriosis.

For any further information please contact Christopher Graham, Medical Student at the University of Edinburgh.

You can access the survey here:
https://edinburgh.onlinesurveys.ac.uk/pain-imagery-in-endometriosis-worldwide

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