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Endometriosis Awareness 2009

Endometriosis Awareness Week is an annual event which gives women with endometriosis a real focus to raise awareness regionally, nationally and within local communities. Raising the profile of endometriosis also provides an opportunity to raise funds for research into better treatments!

 

Endometriosis Awareness Week in Europe, Australasia and South America is 2 - 8 March 2009, and in the United States it is for the entire month of March.

Please get involved with your national support organisation! - Whatever you can do really will make a difference!
Awareness 2009

 

See below for what took place in 2009. CLICK HERE for information on Awareness Week in 2010.

   
AUSTRALIA

Endometriosis Association Queensland (EAQ) is planning a "tour de force" to cover 4,400 kilometers during Endometriosis Awareness Week to raise awareness of the disease in Townsville (3 March at 10.30), Bundaberg (4 March 10.30) and Mackay North (6 March at 11.30). These awareness efforts have been made possible from the proceeds of the 2008 quilt raffle, which raised A$1420.00.

EA Queensland scheduleSee attached schedule of events [PDF]

EA Queensland schedulePlease buy tickets for the 2009 raffle and keep the awareness going!

A 4-week series of Arts-based workshops for women with endometriosis will take place in Hawthorn, Melbourne, Australia on 6, 13, 20, 27 March (10.30-12.30). No art skills are necessary, just throw yourself into expressing your feelings about endometriosis! Workshops will be facilitated by Tricia Ong, graduate of the Master of Creative Arts Therapy Program, RMIT University, Melbourne.

EA Queensland scheduleEnrol here [email] or call 0416-034664

An arts-based workshop for women with endometriosis will take place in Hawthorn (Melbourne, Australia) on 22 April 2009 from 19.30-21.30. No previous experience needed.

EA Queensland scheduleMore information [PDF]

 

AUSTRIA

On 16 May the Austrian Endometriosis Association (Österreichische Endemotriose Vereinigung) will hold the "4th Austrian Endometriosis Information Day" in Vienna, SKydome im Wiener Hilfwerk, Schottenfeldgasse 29/2, 1070 Wien. Specialists and therapists will hold speeches and present information desks, offering different topics concerning endometriosis, like luna yoga, hormon therapy or a new austrian medical center.

EA Queensland scheduleDetailed programme

 

BRAZIL


Sociedade Brasileira de Endometriose (The Brasilian Society of Endometriosis) launches its third awareness campaign with the objective of providing information to the general public on endometriosis. Its actions are aimed at providing information to the populations of four geographical areas of Brazil and to female employees of large Brasilian companies.

EA Queensland scheduleRead more

 

FINLAND

Finnish Endometriosis Association has two lectures on 7 March 2009 in Helsinki. One concerns basic information about endometriosis and the other one is about handling pain. The lecturers will be conducted by Finnish specialist in these areas. This year is the 10th anniversary of Finnish Endometriosis Society, so on the evening of Saturday the 7th members and partners will have a celebration and a dinner.

EA Queensland scheduleMore information

 

GERMANY


Endometriose-Vereinigung Deutschland will have an "Endometriose – peer-to-peer – telephone“ available from 2 - 6 March from 18:00 – 20:00, and from 6 - 8 March a "Jahrestagung der Endometriose-Vereinigung Deutschland e.V., in Bad Salzuflen, with the theme: "Endometriose & (un)erfüllter Kinderwunsch“.

EA Queensland scheduleEndometriose-Vereinigung Deutschland's schedule of events

 

IRELAND


The Endometriosis Association of Ireland is holding a support group meeting on Saturday 7 March 2009 at 14.00 - 17.00, which is open to anyone who has endometriosis or would like to know more about it. The afternoon includes talks on conventional and complementary therapies by GP Patricia Black and Naturopathic/Homeopathic practitioner Ms Jean Fitzgerald, as well as a talk and practical demonstration by Maeve Whelan, Specialist Chartered Physiotherapist in the field of Women’s Health. There will be a presentation on the recent Symposium on Endometriosis at the WHO Centre in Bonn, Germany, followed by the launch of our new Teenage Information Leaflet and the Association's Annual General Meeting.

Location: Kerdiffstown House (St Vincent de Paul Holiday Centre), Johnstown, Naas, Co Kildare

EA Queensland scheduleMore information or email us

 

ITALY


Associazione Italiana Endometriosi (AIE) will be holding awareness events throughout Italy, and the AIE president, Jacqueline Veit will be presenting at a special congress on "Endometriosis" at the Ministry of Work, Health and Social Politics in Rome on 9 March 2009.

EA Queensland scheduleAIE schedule of events

Associazione Progetto Endometriosi (APE) has scheduled events across Italy during endometriosis awareness week.

EA Queensland scheduleAPE schedule of events

 

MALTA


Endo Support Malta is having a meeting on 5 March 2009, where they are joined by a woman, who will come and shre her experience of how she has overcome endometriosis.

EA Queensland scheduleMore information

 

NETHERLANDS

On 7 March the Dutch Endometriosis Society organises its annual meeting in the Academical Medical Centre of Maastricht. The theme is endometriosis and work. How do you cope your health in relation to work and have an active social live as well?

The opening will be done by Professor Hans Evers, President the World Endometriosis Society. There will be speeches and workshops. This year Claudia Schoemacher arranged for all visitors a free ticket for a wellnessday in Wellnessresort Zwaluwhoeve.

EA Queensland scheduleMore information

 

NEW ZEALAND


Endometriosis New Zealand will be active for the whole month of March with activities focusing on the ENZ growth, government, events and announcements and women and girls with the condition, as outlined in brief:

ENZ has employed Elaena Havell who begins an exciting career this year expanding the services and programmes ENZ has become known for. She will control rollout of the 'me' programme and introduce the new ‘all about me’ campaign designed to set up support groups in schools and provide personal counselling. 

EA Queensland scheduleSee www.me.school.nz for more about 'me'

Elaena is re-establishing the YES group and together with other ENZ support groups, has set up a national March campaign to raise funds through a project called “Girls Night In”.  Girls around the country are planning their own fun night in, donating the money they would have spent to ENZ.  In fact, some parents have been inspired to hold their own ‘night in’ with shared meals and movie nights being just some of the activities we’ve heard about.   

EA Queensland scheduleMore information

ENZ reaches government.  A meeting has been planned for the first week of March to discuss the report ENZ submitted to government in February.  This was the result of a contract ENZ had with the NZ Government. Recommendations and the pathway forward will be discussed which is of national and international interest.   Government has scheduled a meeting in March to discuss the report and next phase.

ENZ and Zonta has proving to be a wonderful association of the two organisations.  The combined Auckland groups held a magnificent ‘All about me High Tea’ in Auckland at the Heritage Hotel in February.  Money raised will help us expand ‘me’ into Auckland schools.  March is Christchurch’s turn and the Zonta Clubs have combined to have a wonderful fun packed dinner on March 9th with money raised going to awareness, resource provision and ‘all about me’ in Canterbury.

Come and meet us in Hamilton at the Women’s Lifestyle Expo 14 and 15 March.

EA Queensland scheduleMore information

ENZ has a media celebrity gearing up to make March the month to let everyone know about endometriosis.  We can’t imagine he’ll leave many stones unturned!We will update you with details – more to come....

ENZ will announce a sponsorship arrangement with a market leader in the field.  A company who are prepared to support women at grass roots level because they care. Watch this space.....

 

PUERTO RICO


On Thursday 12 March 2009 the Capitol Building will light up in yellow to recognise Endometriosis Awareness Month. This is the second year Endometriosis de Puerto Rico have done it. That night we will have representation from our House of Law who join us in the awareness program. There will be a cocktail, classical music by a trio (flute, violin, chello) and an art exposition. We invite patients and doctors alike to this activity, which last year received ample media attention.

EA Queensland scheduleMore information [PDF]

Endometriosis de Puerto Rico will have an educational program on 28 March, with three speakers who will talk about endometriosis, nutrition, and infertility, as well as a fundraising activity at the San Juan Hard Rock's Café  entitled: Hard Rock Café Yellow Cat Walk, featuring a fashion show and a music show by a local band.

EA Queensland scheduleMore information


UGANDA


Joyce Fertility will be targeting newspapers about adolescents with endometriosis, and will be approaching hospitals for them to share data on those who present with endometriosis.

EA Queensland scheduleUpdate from Uganda [word document]

 

UNITED KINGDOM


The vice president of the European Parliament is running the London Marathon to raise funds for endometriosis research. Diana Wallis MEP is running for every single woman in the world who would like to see better treatments for endometriosis. The goal is to raise £20,000 for WERF to conduct more research!

EA Queensland schedulePLEASE support Diana and endometriosis research now

Endometriosis UK will release the results of an online survey of 1000+ teenagers and young women looking at their experience of period pain, where they go for support and advice, what treatments they get offered, impact on their lives etc.

They will also be launching a survey of hospital trusts asking them what services they provide for women with endometriosis - specilialist clinics, no dedicated clinic but a specialist in residence, nurse led clinics etc.

EA Queensland scheduleEndometriosis UK's schedule of events for awareness week

 

USA


The Endometriosis Research Centre has tabled a petition for the US Citizens’ Stamp Advisory Committee to approve an Endometriosis Stamp honoring the millions of American women and girls who suffer from endometriosis. It is the ERC's hope that such a stamp may be unveiled to the American public in the month of March 2009!

Sign the petition!

For the third year in a row a Yellow Shirt Day is hosted on Facebook and MySpace, with 600 men and  women (so far) participating on 2 March by wearing yellow shirts! You can support this initiative by purchasing a t-shirt from the ERC.

Contact the organiser [email]
Purchase t-shirts

 

RAISE AWARENESS AND RAISE MONEY FOR ENDOMETRIOSIS RESEARCH





Contact WERF for information on
how you can help raise funds
for research in endometriosis!

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SEE ALSO


London Marathon 2009

clinical trials

support group news


London Marathon 2009

research news

endometriosis guideline

London Marathon 2009

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